We are in the process of trying to shore up our retirement savings with an investment company that sets retirement through life insurance/disability insurance that rolls into dividends. Of course they are being super intrusive about our medical history before they admit us. Through this process, I was told that I have Factor V Leiden, a genetic clotting disorder (the underwriter ferreted it out of my medical record and had all kinds of questions to which I had no answers, because I've never heard of it).
To say that I'm angry is an understatement.
I know exactly where it comes from-- the only time I've ever had genetic testing was in 2009 by the fertility specialist after my last (of 3) miscarriages. I remember the conversation-- he said I had tested positive for a blood related disorder, but that it was no big deal because I only had one not two copies of the gene and that it couldn't explain my miscarriages but would mean I would probably need to go on aspirin early for future pregnancies to thin my blood.
And then he told me that nothing significant popped up otherwise and his best guess was that my miscarriages were because I was so fat, and that I should get lapband surgery before I tried to get pregnant again.
And then he prescribed me a birth control pill to prevent any accidental pregnancy until I had the surgery and sent me on my merry way.
Fast forward to now, when I'm told I have Factor V Leiden and they want to know what kind of treatment I'm receiving for it. The answer: none. I'd never even heard of the term (because the doc used these really general terms and basically acted like it was no big deal).
Um, except that it is a big deal. First, it is CLEARLY the cause of my last miscarriage without any doubt whatsoever. Factor V Lieden is a clotting disorder-- it makes you more likely to develop deep vein thrombosis, clots that travel to the lungs (pulmonary embolism), and surprise surprise, clots and miscarriages in women who become pregnant. In my last pregnancy, I had blood clots in the chorion right outside the placenta the entire pregnancy, which caused me to keep bleeding fairly heavily even though the baby was growing great with a normal heartbeat, etc. Seriously, I had weekly ultrasounds with it because we were monitoring the clot size and the baby size. And then at 13 weeks I lost it in the ER.
I did not have a miscarriage because I was fat. I had a miscarriage because these huge blood clots formed and compromised the uterus. But once again, obesity is the default reason for EVERY health problem in a fat person. How do you treat it-- just lose weight! Um, yeah, I have lost weight and from what I'm reading I'm still probably going to have blood clots during pregnancy that increase miscarriage, stillbirth, and traumatic birth. Thanks for that info, fertility specialist! Also, thanks for prescribing me birth control pills, which are absolutely contraindicated for someone with blood clotting disorder! Oh yeah, and for telling me to have surgery, but then not telling me to make sure I tell the doc about my blood clotting disorder which is a risk factor for surgery because that's when I'm most likely to experience a pulmonary embolism!
I'm just pissed beyond belief that I have to find out this info from a freaking life insurance underwriter. And yes, I'm pissed at myself that I just took in that nugget of info and took his word for it that it was no big deal and never even though to educate myself.